Chronically Marvellous

"As the founder of Chronically Marvellous, I am driven by my own personal experience of being denied essential adaptations due to outward appearances, I battle daily with Systemic Lupus and Dilated Cardiomyopathy with Heart failure. I also struggle with poTS and EDS. Despite all of this, I was left without any assistance for almost three years. My mission is to ensure that no one else has to suffer the way that I did, by advocating for equal access, and providing life-changing support to those in need." .

" "Being housebound is not easy; I never know how I am going to feel from day to day. What I do know, is that my conditions have progressed, and there are more bad days than good days. Chronically Marvellous has given me a purpose to keep going." "

• We provide services for people living with a chronic disease at every stage, whether you are newly diagnosed and trying to get your head around it all, or have been living with a chronic condition for a while, we are here to help. We can provide emotional and practical support. In some instances we may need to signpost.
  
• The Chronically Marvellous helpline offers free, confidential support to people living with a chronic illness. if you need to talk, we are ready to listen.
  
• Our Support Group meet face-to-face every Friday at 5pm - 7pm. Our online Support Group meetings are on Fridays at 12:30pm via Zoom. If you have not yet signed up and are interested in joining please drop us an email or head over to Eventbrite and sign up there.
  
• We run a referral scheme where you can apply for a wheelchair or mobility scooter and small adaptations. This is for individuals who have lost their independence due to mobility issues. For example an autoimmune disease, dysautonomia, Chronic Fatigue or even Chronic Pain. In order to see if you qualify please email for an application form.
  
• If you would like to nominate someone, or yourself for a wellbeing hamper, please get in touch as these are tailor made to the needs of the person receiving it.
  

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